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Some of the clinical severity of chronic obstructive pulmonary disease (COPD) is determined by also having other medical conditions. One common medical condition is acid reflux, technically called gastroesophageal reflux disease (GERD). People with COPD who also have reflux have a higher risk of suffering with acute exacerbations. GERD is one of the most common…
Alpha-1 antitrypsin is a protein found in blood plasma. When an individual has severely deficient levels of the alpha-1 protein in their blood, it can cause emphysema. For these individuals, medical providers recommend augmentation therapy to replace what their bodies do not make naturally. Healthy plasma donors make this possible by donating their plasma. The…
Bronchiectasis is a condition that affects hundreds of thousands of Americans each year. While COPD is the most common cause of bronchiectasis, individuals with genetic conditions like cystic fibrosis and alpha-1 antitrypsin deficiency account for approximately 10% of cases. Bronchiectasis (braang·kee·ek·tuh·suhs) means “dilated airways.” When large or dilated airways in any part of the lung…
Hello, my name is Cameron Sinning and I would like to introduce myself as your AlphaNet Coordinator. I live in Lawton, Oklahoma with my amazing spouse, who I care for, and our pups. I like to go hiking, go out for walks, and work on old model cars. I am a big-time gamer and love…
Hello, my name is Annette Parslow and I would like to introduce myself as your AlphaNet Coordinator. I currently live in Florida with my husband. We moved from Rhode Island in the early months of 2014 shortly after I was diagnosed in 2013 with Alpha-1 Antitrypsin Deficiency. My Alpha-1 journey began when I started noticing…
Hello! My name is Greg Jenkins, and I would like to introduce myself as your AlphaNet Coordinator. I am originally from the Chicago area and currently live in Palmetto, Florida (south of Tampa) with my wonderful wife, who I married in 1983. Together, we have two grown children and enjoy spending time with them. I…
It is with great sadness that we share the news that AlphaNet Coordinator Kathleen Brown passed away on February 16, 2023. Kathleen joined AlphaNet as a Coordinator in 2012 and was dedicated to helping her Alphas get the assistance, education, and support they needed. “Kathleen joined AlphaNet in October 2012 and often said how much…
AlphaNet created the Big Fat Reference Guide to Alpha-1 (BFRG) for individuals with Alpha-1 Antitrypsin Deficiency (Alpha-1), their family members, caregivers, and healthcare providers as an explanation of the basic principles of wellness and Alpha-1 health management. The BFRG was written and compiled by expert Alpha-1 medical doctors, nurses, researchers, caregivers, and individuals with Alpha-1.
It is with great sadness that we share the news that AlphaNet Coordinator Donna Wells passed away on December 15, 2022. Donna joined AlphaNet as a Coordinator in 2020 and was devoted to providing education and resources to her fellow Alphas. “Donna was a very kind and special person. She joined AlphaNet in early January…
Hi, my name is Terese Henner and I would like to introduce myself as your AlphaNet Coordinator. I live in Cape May, NJ with my husband of 48 years, Pat. We have 3 children and 5 grandchildren. We are originally from Philadelphia. When we retired, we moved to Jersey and built a big house so…
