Alphas Serving Alphas
Our AlphaNet Coordinators have Alpha-1, too. They're the heart of AlphaNet and are here to guide and educate you on your journey with Alpha-1.
Kathie Sivesind, AlphaNet Coordinator since 2002
Your AlphaNet Coordinator is an Alpha just like you. They have a unique understanding of the issues and concerns you may have living with Alpha-1.
In honor of the late Ab Rees’ extraordinary contributions to the Alpha-1 community, AlphaNet is proud to donate $200,000 to the Alpha-1 Foundation to support the Alpha-1 Biomarkers Consortium (A1BC) study and establish the “Ab Rees Fast Track Awards.” The A1BC grant, funded by the National Institutes of Health (NIH), was created to identify and characterize biomarkers in Alpha-1 Antitrypsin Deficiency that are needed to advance a cure for this disease.
Looking for the most comprehensive guide to living with Alpha-1 Antitrypsin Deficiency on the web?