Why Join AlphaNet?

As an AlphaNet subscriber you will have a Coordinator to guide you, access to the latest medical information, and a portal to connect you with the AlphaNet community.

Find a Coordinator

Your AlphaNet Coordinator is an Alpha just like you. They have a unique understanding of the issues and concerns you may have living with Alpha-1.
What is Alpha-1?

What is Alpha-1?

What is Alpha-1? Who has it? What are the symptoms? Is there a treatment? Get your questions answered.

Working together behind the scenes

Your AlphaNet Coordinator is an Alpha just like you. They have a unique understanding of the issues and concerns you may have living with Alpha-1.

AlphaNet Mourns the Loss of Veteran Coordinator Kathie Sivesind

It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, 2025. Kathie was a beloved AlphaNet Coordinator and dedicated more than two decades of her life to helping individuals with alpha-1 antitrypsin deficiency (Alpha-1).

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The Big Fat Reference Guide

Looking for the most comprehensive guide to living with Alpha-1 Antitrypsin Deficiency on the web?