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Alphas Serving Alphas
Our AlphaNet Coordinators have Alpha-1, too. They're the heart of AlphaNet and are here to guide and educate you on your journey with Alpha-1.
Your AlphaNet Coordinator is an Alpha just like you. They have a unique understanding of the issues and concerns you may have living with Alpha-1.
It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, 2025. Kathie was a beloved AlphaNet Coordinator and dedicated more than two decades of her life to helping individuals with alpha-1 antitrypsin deficiency (Alpha-1).
Looking for the most comprehensive guide to living with Alpha-1 Antitrypsin Deficiency on the web?