Hello, my name is Donna Wells. I would like to introduce myself as your AlphaNet Coordinator.
I currently live in Frankfort, Indiana with my Jr. High School sweetheart who I married in 1984. We have two grown children that are married to great spouses, and we are blessed with six grandchildren.
Animals have always been one of my great passions. We have a hobby farm with horses, llamas, barn cats, and other 4H animals that my kids left behind. I’ve fostered dogs for years. I also have been a member on the Humane Society board. My other loves are re-purposing furniture, antiques, flower gardens and arranging flowers.
From my 20’s on I would get pneumonia once a year, go to doctor, get medication and be on my way. I never felt I had any health issues. At the age of 39 yrs old, I began getting short of breath. I thought I was just getting older. My husband finally talked me into going to a doctor. My doctor informed me that I had emphysema. I asked my doctor why, and he stated that sometimes there are no answers. This was when I prayed for wisdom and then I Googled emphysema. Alpha-1 Antitrypsin showed up on my search and I went back four times to my doctor to ask for a test. He finally gave in and tested me. I was diagnosed as a ZZ.
My doctor then referred me to a pulmonologist who told me to get my affairs in order and prepare for a lung transplant. That was 15 yrs ago and I tell people that I am just a procrastinator. With all seriousness, it was a scary time for me as I was educating my doctor on augmentation therapy, and Alpha-1. Then I started educating everyone I met in the medical field, and anyone with lung or liver issues because I knew people needed to know about Alpha-1.
Once I was assigned a coordinator, it made my Alpha-1 journey much easier by knowing that I had someone to help get answers for me. Now I want to give back that same way and I am looking forward to helping you on your Alpha-1 journey.
Coordinator: Donna Wells
Phone: (844) 533-0733
State/Province/Territories: Coordinator At Large
Zip Code (first 3 digits only):