Cindy Dvoracek

Hello, my name is Cindy Dvoracek, and I would like to introduce myself as your AlphaNet Coordinator.

I was born and have lived most of my life in the mountains and foothills of rural northern California, where I’ve enjoyed outdoor activities galore right outside my door. I enjoy kayaking, camping, dancing, yoga, and I’m a big dog lover! I am a proud mom and grandma to three wonderful sons and eight fabulous grandchildren, who I adore.

Since the 1990s, my career path has covered various positions in a fast-paced software sales environment, where I was fortunate to travel throughout the United States and some international travel as well.

Until about age 40, I enjoyed very good health and was able to climb mountains, camp, and backpack with no issues. However, after 40, I started noticing breathlessness and other vague symptoms. I thought I was just “getting older and out of shape.” Sadly, around that same time, my mom and brother passed away. Both had recently started experiencing respiratory issues. I knew potentially there could be a genetic link, and spent the next 15 years searching for answers, seeing specialists, and having many tests.

Finally, in early 2017 with the help of a DNA report, I found out I had two Z alleles for Alpha-1. I didn’t know what that meant at first, but after finding the Alpha-1 Foundation, I was able to learn a lot more about the condition, see an Alpha-1 specialist, join a support group, get my family tested, begin augmentation therapy with weekly infusions, attend Alpha-1 National Conferences, and participate in research studies. My husband and I now do my weekly infusions ourselves, which gives us much greater freedom.

Since my diagnosis, I’ve made some life adjustments, but my goal is always to “keep the forward momentum.” I tell myself to keep moving, one step at a time, down the road towards the desired goal. Whether overwhelmed with a new diagnosis, starting an exercise plan or getting through the complexities of insurance, I’ve found that even making one phone call or taking a 10-minute walk counts as progress. And when all else fails, tomorrow is a new day.

It’s been a long road and not always easy, but I wasn’t alone…along the way I’ve met so many friendly, knowledgeable and supportive “Alpha-1 Family Members.” These people, who helped me along the road since my diagnosis, have inspired me to reach out and help other Alphas who may be overwhelmed and finding their way. I’m excited about all the research being done with Alpha-1 and the fact that a cure is on the horizon for future generations. In the meantime, I feel privileged to support the Alpha-1 community.