AlphaNet, Inc.

Patient Information Privacy Policy

We understand that individuals affected by alpha-1 antitrypsin deficiency are concerned about the privacy of information. Therefore, we have established policies and procedures concerning the collection, use and security of the contact and medical information of those we serve. Our Information Privacy Policies are designed to help us preserve our firm commitment to the privacy of the contact and medical information of those we serve while maintaining strict security standards.

Making the Security of Information a Priority
AlphaNet Coordinators have access to information for patients only in their geographic service area.  We restrict access to nonpublic personal information about our patients to only those who have a need to know that information in connection with the purposes for which it is collected and used.  The patient database is located on a secured, stand-alone computer.  Patient information does not reside on AlphaNet’s network server.  AlphaNet’s Information Technology Manager maintains the information database.  Within AlphaNet, Inc. our employees have been trained to protect your personal information.  To that end, we’ve established physical, electronic and procedural safeguards to protect your medical and personal information.  Security measures in place are expected to protect against the loss, misuse and alteration of the information under our control.

Collecting Information
We may collect and use information to service your Prolastin supply and maintain quality assurance.  The information exchange is primarily with Dohmen Life Science Services. This information is shared only to the extent necessary to maintain your Prolastin supply and provide you with quality health management services.  The type of information that we maintain includes:  your name, address, phone number, e-mail address, doctor’s name and contact information, Prolastin dosage, necessary medical supplies and Prolastin shipping records.  Should your relationship with AlphaNet, Inc. end, your personal information will remain protected in accordance with our privacy practices outlined in this Policy.

We may collect and use information to service your Zemaira supply and maintain quality assurance.  This information is shared only to the extent necessary to maintain your Zemaira supply and provide you with quality health management services.  The type of information that we maintain includes:  your name, address, phone number, e-mail address, doctor’s name and contact information and Zemaira dosage.  Should your relationship with AlphaNet, Inc. end, your personal information will remain protected in accordance with our privacy practices outlined in this Policy.

We may collect and use information to service your Aralast and Glassia supply and maintain quality assurance. This information is shared only to the extent necessary to maintain your Aralast/Glassia supply and provide you with quality health management services. The type of information that we maintain includes: your name, address, phone number, email address, doctor’s name and contact information and Aralast/Glassia dosage. Should your relationship with AlphaNet, Inc. end, your personal information will remain protected in accordance with our privacy practices outlined in this Policy.

There is no demographic or medical information shared between AlphaNet, Inc. and the Alpha-1 Foundation.  Grifols, CSL Behring and Shire may receive only aggregated data from AlphaNet, Inc., so that individual records remain confidential.

Making Sure Information is Accurate
Keeping accurate patient records is very important to us.  We will promptly update or correct any erroneous information.  If you ever find that your information is incomplete, inaccurate or not current, please call or write your AlphaNet Coordinator or our corporate office at:

AlphaNet Privacy Officer
3300 Ponce de Leon Boulevard
Coral Gables, Florida 33134
1 (800) 577-2638 x267

Honoring Your Preferences
You have choices when it comes to learning about new services from AlphaNet, Inc.  You can choose not to receive mailings regarding new services by contacting the address or phone number above.  You can also choose to “opt-out” of all services provided by AlphaNet by contacting your Coordinator.

Availability of Privacy Policy
This policy may change from time to time, but you can always review our current policy on our web site at:  www.alphanet.org or contact us for a copy at:  1 (800) 577-2638 x267.  If there is a substantial change in the Policy, you will receive a copy by mail.

Original effective date May 1, 2001; updated 2004, 2006, 2008, 2016.
© AlphaNet, Inc.