AlphaNet offers support for Alphas both on and not on augmentation therapy. Please see the following sections below for more information:
We know that living with Alpha-1 can present risks to your health even though you may currently feel good and not require augmentation therapy. That’s why AlphaNet has a free, voluntary enrollment program specifically focused on maintaining the health of Alphas whose current status does not require advanced treatments such as augmentation therapy. This program is called REACH.
Who is eligible to enroll in the REACH Program?
- Alphas NOT on augmentation therapy with any combination of rare/deficient alleles – not just ZZs.
- Healthy asymptomatic Alphas NOT on therapy, or Alphas with any amount of lung disease and/or liver disease NOT on therapy. Alpha carriers do not qualify.
- Parents with a minor Alpha child.
- Alphas who’ve had lung transplants and are NOT on augmentation therapy.
- Alphas formerly on augmentation therapy.
When you enroll in the program, you will be assigned a REACH Coordinator who will contact you periodically (monthly, quarterly or twice yearly based on your Risk Assessment) to focus specifically on prevention, wellness, and health maintenance activities. By signing up, you get access to tools, information, and support you need to help you stay well.
As an Alpha on augmentation therapy, you may already be signed up with an AlphaNet Coordinator. For those who do not have an AlphaNet Coordinator, our services are free and enrolling is easy.
AlphaNet provides education on the most up-to-date treatments, interventions, and lifestyle changes discovered from research. Our health management program is comprehensive and structured to meet the specific needs of individuals diagnosed with Alpha-1 Antitrypsin Deficiency. AlphaNet’s Alpha-1 Disease Management and Prevention Program, or ADMAP, was developed to support not only Alphas but also their families and health care providers. We define ADMAP as an integrated system of education, interventions, measurements, and refinements of health care delivery designed to optimize clinical and economic outcomes for individuals with Alpha-1. The goal is to prevent disease, improve the quality of life, and efficiently manage health resources for Alphas.
Our medical team is comprised of world-renowned Alpha-1 pulmonary physicians who are involved in global Alpha-1 research, and who provide the latest findings back to our subscribers. Our goal is to provide you with all the information you need to manage your health as an Alpha.
If you are interested in signing up for AlphaNet’s services, please click here to find a Coordinator in your area.