In Memory of John W. Walsh
The Board of Directors, management staff, employees and volunteers of AlphaNet mourn the passing of our Co-Founder and former President and Board Chairman, John W. Walsh. John leaves behind an amazing legacy of civic service, advocacy and philanthropy.
In 1989 John was diagnosed with Alpha-1 Antitrypsin Deficiency, a genetic condition affecting the lungs and/or liver. After discovering how little was known about the condition and that minimal Alpha-1 research was being conducted, John co-founded the Alpha-1 Foundation in 1995. Later that year, he co-founded AlphaNet to provide health management services to Alphas and to fund Alpha-1 research.
John was a nationally recognized advocate for orphan diseases, particularly Alpha-1. He testified before Congress to lobby for additional research funding and served on numerous health agencies and government advisory committees. He was a Chairman of the National Health Council and served on the National Institute of Health’s Council of Councils.
No other individual has done more to advance the research and treatment of Alpha-1 than John Walsh. We extend our sincere condolences to the Walsh family.