Hi, my name is Michael Ray and I would like to introduce myself as your AlphaNet Patient Services Coordinator.
I currently live in Kansas City, Missouri with my wife, Terry. We have two wonderful daughters, three amazing granddaughters and two fabulous grandsons.
After college, I worked 30 years for an international, multi-faceted energy corporation. I took an early-retirement package after a merger with another major energy corporation. To manage my pension after retirement, I became a Series 65 Investment Advisor, started my own 401K management company and eventually, became a day trader in the stock market. Later, I went to work for an engineering group as a consultant / coordinator doing computer upgrades and modernization of equipment for the company for which I had previously worked. After completing that project, I became uninsured and uninsurable as a result of my “pre-existing condition.” While seeking insurance, I was recruited by an insurance company to become a licensed agent in Kansas and Missouri.
I have always led a healthy lifestyle with little or no effects from Alpha-1, in spite of my genotype. My brother, on the other hand, was not as fortunate. Being a heavy smoker, he began having pulmonary issues at the age of 50. While preparing for a double lung transplant, he was tested and diagnosed with Alpha-1. Even though I had no issues, it was recommended that I be tested. My mail-in test revealed that I was genotype ZZ (same as my brother). In July 2014, I became eligible for Medicare. Through efforts of AlphaNet and the Alpha-1 Foundation, I was able
to find an Alpha-1 specialist and began augmentation therapy in September. I joined a local Alpha-1 support group in Kansas City.
People who know I have Alpha-1 ask how I am able to maintain a healthy lifestyle. Even though Alpha-1 affects everyone differently and to varying degrees, my advice to fellow Alphas is to address health issues as they arise and to get “CONNECTED” with as many support elements as possible. Staying connected to a community can guide and direct you to a better, healthier life. I am proud to be part of AlphaNet, a wonderful support group, where I can serve my fellow Alphas. I will call you at least once a month to discuss current topics in the Alpha-1 community. AlphaNet has a wonderful Disease Management Program that you may find beneficial. Because it is so reader-friendly and chock full of information, great lifestyle tips and medical facts, we’ve named it the Big Fat Reference Guide. You can also find it on our website at https://www.alphanet.org. If you don’t have access to a computer, just give me a call. Please know that you can call me or e-mail me anytime with any question you have about Alpha-1 Antitrypsin Deficiency. If I don’t know the answer, I can find it for you or get you to a person who does have the answer. You can also contact me about your therapy, medical supplies or insurance issues, because I work with pharmacy professionals every day. Occasionally, we feel as though no one knows what we are going through with Alpha-1.Sometimes we just need the comfort of talking to someone who does. So, if there is an occasion when you have a question or an issue you want to discuss, please call me.
Coordinator: Michael Ray
Phone: (844) 245-7966
State/Province/Territories: Alaska, Arkansas, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas, Kentucky, Michigan, Minnesota, Missouri, Montana, Nebraska, Nevada, New Mexico, N. Dakota, Ohio, Oklahoma, S. Dakota, Utah, Wisconsin, Wyoming
Zip Code (first 3 digits only):
Product: Shire (Aralast/Glassia)