Hello, my name is Deni Ott and I would like to introduce myself as your AlphaNet Coordinator.
I live in Salt Lake City, Utah with my amazing husband, four beautiful children and one furbaby. In my free time, I enjoy puttering around my garden, watching my children play sports, and traveling to new and exciting places – all the while listening to an awesome 80’s soundtrack. More than anything, I love to spend quality time with my family and enjoy watching movies, hot tubbing and playing games.
I was diagnosed with “exercise induced asthma” at 13, but the inhalers never seemed to help. As I got older, I found myself regularly getting sick about late fall, worsening in the winter, and – without fail – ending up with bronchitis that would last through spring. I rarely went to the doctor because my whole family was like that and I figured if I let my body fight off the infection it would build up resistance and make it stronger against the next sickness. About four or five years ago I started to notice some shortness of breath and it was getting harder to workout. I attributed that to “getting older” and just pushed myself more.
Then, on Superbowl Sunday 2016, Alpha-1 came into my life by way of a whirlwind family secret and 23andMe — You are always welcome to ask for my detailed story; every Alpha has a story and we love to share it with our Alpha family.
After the initial diagnosis of my oldest sister as a ‘ZZ’, we arranged a couple of family “testing days.” First round included myself, my other sister, and our immediate families (mom, husbands, children and their significant others), then on to aunts, uncles and cousins. My other sister and I were both diagnosed as “ZZ,” and our mom, all four of our daughters and every one of their significant other’s tested as MZs. 10 new Alphas, just like that! At that moment I knew it wasn’t a “rare” condition, but an underdiagnosed condition. I started augmentation therapy in October 2016. I have made Alpha-1 awareness part of my daily conversations with people; discussing symptoms and telling people how important testing and early diagnosis is.
While it was a relief to have a name and some information to go on with this new condition, it was also scary and overwhelming. I was so thankful to have my AlphaNet Coordinator, who became a part of my family – And now I am able to serve you! I am here to support you through every step of this journey; the tears, smiles, and frustrations. I hope to provide you comfort, assistance, and encouragement, to listen and answer questions…your voice will be heard, and I can’t wait to hear your story.
Coordinator: Denise “Deni” Ott
Phone: (844) 724-2382
State/Province/Territories: Coordinator At Large
Zip Code (first 3 digits only):