Hello! My name is Siobhan (Shi-von) Lestina and I would like to introduce myself as your AlphaNet coordinator.

I grew up in Northern Ireland and moved to the United States in 2001. I have lived in Colorado and Wyoming, but now call O’Fallon, Missouri my home, where I live with my husband and two children.

I was diagnosed with Alpha-1 when I was 35 years old. I was told I had asthma my entire life but, in my 30’s, my breathing took a turn for the worse.  I had multiple tests performed with no answer until I finally found a doctor who knew what to look for.  It was determined that I was a ZZ.

I would like to say I took the news well, but it honestly took me two years to come to terms with my condition. It was not an easy pill to swallow, but with the help of AlphaNet and my coordinators, I learned not to look at this as a death sentence, but as a new chapter in my life.  I am happy that, as a coordinator, I can pay this generosity forward and help other Alphas who may feel as I once felt.  I am here to help, talk, educate, and most importantly, listen. I am here for you.

Coordinator: Siobhan Lestina

Phone: (888) 372-3789

Email: slestina@alphanet.org

State/Province/Territories: Coordinator At Large

Zip Code (first 3 digits only):

Country: USA

Product: Prolastin