The third component of the ADMAP Program is its unique telemonitoring system. This system forms the foundation for the disease management of Alphas under AlphaNet’s care. The AlphaNet Coordinator is, indeed, the heart and soul of the operational structure of AlphaNet. All of our AlphaNet Coordinators are persons with Alpha-1, not medical professionals. As such, our AlphaNet Coordinators live our motto, “Alphas serving Alphas.”
Individuals enrolled with AlphaNet are assigned to a specific AlphaNet Coordinator based upon geographical location. Their assigned AlphaNet Coordinator then contacts each enrollee at least monthly via telephone. In this way, they function as AlphaNet’s “frontline” for support, education, customer service, and collaborative self-management of the AlphaNet enrollees. As a formal component of ADMAP, the AlphaNet Coordinators completed a comprehensive ADMAP staff development program. The results of this educational effort were measured using pre-program test scores compared with post-program test scores. Additionally, AlphaNet Coordinators are educated in each of the research initiatives in which AlphaNet participates and are frequently the primary interface with the patients in these studies.