AlphaNet

Topics of Interest

Air Travel and A1AD
May 2008

Services

AlphaNet Services

As an umbrella for AlphaNet’s subscriber services, the AlphaNet Disease Management and Prevention Program (ADMAPP) provides comprehensive support, education and self-management strategies for Alphas. ADMAPP was developed by AlphaNet for use by Alphas, their families and their health care providers.

The program’s goals are to prevent the development of disease, improve the quality of life, and efficiently manage health resources for individuals with Alpha-1. Click here to view complete descriptions of the comprehensive services provided by AlphaNet as part of ADMAPP.

AlphaNet also provides specialized support services to subscribers undergoing augmentation therapy. For Alphas whose treatment includes infusion with either Prolastin® or Zemaira®, AlphaNet Coordinators provide a range of assistance with infusion-related issues as part of a supportive monthly telephone contact. These contacts may also include education about self-management strategies as part of ADMAPP. For more information on these specialized services, go to Specialized Services for Prolastin Users and Specialized Services for Zemaira Users, or check the AlphaNet Coordinator section.

In addition to its direct to subscriber services, AlphaNet’s mission has promoted program and service development in two other arenas, professional education and clinical research. Because AlphaNet recognizes significant variance in the medical treatment of Alphas, AlphaNet has developed and provides specialty-approved education programs for nurses, physicians and respiratory therapists. Please see Professional Education for program details and information on how to obtain these programs.

AlphaNet is committed to providing significant contributions to research and has been instrumental in improving our understanding of Alpha-1 by helping in the management of clinical research studies. See the Clinical Research Organization section for more details.