Information for All Alphas

Chapter 2: Medical Insurance and Disability

Web Sites and Organizations

Americans with Disability Act (ADA)
www.usdoj.gov/crt/ada/adahom1.htm
Call to obtain answers to general and technical questions about the ADA and to order technical assistance materials: (800) 514-0301 (voice) (800) 514-0383 (TDD)

National Council on Disability
www.ncd.gov
Contact to obtain information about mobility assistance devices and pending legislation regarding individuals with disabilities:
1331 F Street, Northwest, Suite 850
Washington, D.C. 20004
Telephone: (202) 272-2004

Medicare and Social Security Disability Insurance
www.ssa.gov
Or, contact the Social Security Administration office located in your area for more information.

Patient Services Incorporated (PSI)
www.uneedpsi.org
PSI is a non-profit organization primarily dedicated to providing health insurance premium assistance, and co-payment waiver assistance for persons with specific expensive chronic illnesses. Call for more information about Alpha-1 programs. 800-366-7741

A.C.C.E.S.S.
Not-for-profit company that helps with the disability application process for disabled people with Alpha-1 at no charge. 888-700-7010

Call the State Insurance Commission in your state for information about high risk pools and HMO open enrollment periods for HMOs.

Risk pools in every state:
www.healthinsurance.org/risk_pools/

Chapter 3: Management of Environmental Risk Factors

Web Sites and Organizations

National Asthma Education and Prevention Program
Telephone: (301) 592-8573

Allergy and Asthma Network/Mothers of Asthmatics, Inc.
Telephone: (800) 878-4403

American Academy of Allergy, Asthma and Immunology
Telephone: (800) 822-2762

American Lung Association
Telephone: (800) LUNG-USA

Asthma and Allergy Foundation of America
Telephone: (800) 7-ASTHMA

U.S. Environmental Protection Agency
Telephone: (800) 438-4318

Chapter 4: Nutrition for All Alphas

Web Sites and Organizations

My Food Buddy
www.myfoodbuddy.com/calorie_counters.htm
Contains meal planning information along with an online calculator for determining the number of calories contained in common foods and the number of calories burned by various types of exercises. An excellent tool for weight loss or weight gain programs.

Life Form
www.lifeform.com
An inexpensive Windows software product designed to help easily track health information, food intake, exercise, measurements, blood test results, and history. 801-221-7777

Eat, Drink & Be Healthy
www.health.harvard.edu
Walter Millet and the physicians at the Harvard Health Letter.

Publications

Eat for the Health of It by Martha Adams Erickson, R.D., MEd., published by Starburst Publishers, Lancaster, PA, © 1997.

Chapter 5: Coping with Alpha-1

Web Sites and Organizations

The National Institute of Mental Health (NIMH)
www.nimh.nih.gov/publicat/index.cfm
Descriptions of mental disorders and treatment opportunities. Also provides a referral service to locate programs, clinical trials, and qualified practitioners in your area.

NIMH Depression Awareness and Treatment Program
5600 Fishers Lane, Room 7C02
Rockville, MD 20857
Telephone: (800) 421-4211

United Fund, Community Resources
www.unitedway.org
On this site you can input your zip code and will be give a list of services available within your community.

Publications

The Talk Book: the Intimate Science of Communicating in Close Relationships by Gerald Goodman, Ph.D. Published by Rodale Press, Emmaus, PA., © 1988.

You Just Don’t Understand: Women and Men in Conversation by Deborah Tannen, Ph.D. Published by William Morrow and Company, Inc., New York, © 1990.

Wishcraft: How to Get What You Really Want by Barbara Sher and Annie Gottlieb. Published by Ballantine Books, New York, © 1979.

Breathe better, Live in Wellness, Winning your Battle Over Shortness of Breath by Jane Martin, R.R.T. Published by Infinity Publishing, Haverford, PA,. www.buybooksontheweb.com, 877-289-2665

Chapter 6: Activity and Fitness for All Alphas

Web Sites and Organizations

American Council on Exercise
www.acefitness.org

American Association of Cardiovascular and Pulmonary Rehabilitation
www.AACVPR.org/resources
A directory of accredited Cardio/Pulmonary Rehabilitation Centers throughout the USA.

Publications

Borg’s Perceived Exertion and Pain Scales by G. Borg in Human Kinetics, © 1998.

Essentials of Strength Training and Conditioning by Baechle, TR [Ed.], in Human Kinetics, © 1994.

American Council on Exercise, ACE Fitness Publication, © 2003.

Getting in Shape – Workout Programs for Men & Women by Anderson, Burke, Pearl, Shelter Publications, Bolinas, CA © 1999 – www.shelterpub.com, 800-307-0131