Help Find A Cure For ALPHA-1!

Being involved in clinical research is one of the most important ways in which Alphas and their families can help find a cure for Alpha-1. It’s easy, get involved!

CSL Behring is currently looking for persons diagnosed with Alpha-1 to participate in a research study. This study is evaluating the long-term (2 year) effectiveness of intravenous augmentation therapy with Zemaira. Subjects who enroll will randomly be assigned to receive either placebo or active drug. The costs related to study procedures, drug, and travel will be paid by the sponsor.

In order to enroll in this study certain criteria must be met. Although not a complete list, some of these criteria include:

1. Age 18-65
2. Documented diagnosis of Alpha-1
3. Must have moderate to severe emphysema
4. Can’t be a current smoker (no tobacco in past 6 months)
5. Can’t have participated in another research study within the past month
6. Can’t have had a lung transplant or other lung surgery

Research sites are located throughout the US. If you or someone in your family meet these criteria and are willing to consider participating in this study, it’s easy to find out more. Call Bonnie Boyd RN BS, AlphaNet’s Director of Disease Management and Clinical Research, toll free at 1-877-913-8141 or email her at bboyd@alphanet.org.