FAQs
Questions to Ask Your AlphaNet Coordinator
- How do I explain Alpha-1 to my family?
- My children?
- What type of exercise should I do?
- Should my family be tested?
- How much of my family (siblings, children, cousins)?
- Can I travel?
- How might this diagnosis affect my career?
- Is this going to keep me from getting a new job?
- Will insurance cover the cost of my care and medications?
- Will my insurance company cancel my coverage?
- Should I be on a special diet?
- Will I need oxygen?
- Will I ever need a lung transplant?
- My doctor doesn’t know much (or anything) about Alpha-1. Is here some information you can get for him/her?
- Are there any clinical trials in which I can participate?
- If I have to receive drugs through an IV, can I have it done at home? How does that work?
- How long is each IV treatment?
- What if I just need to talk?
- How can I connect with other Alphas?
- What can I do at this point to keep from getting worse?
- What if I cannot financially afford to continue treatments?
- What happens if I lose my job because of my breathing problem?